Spinal Tap today, Day 8 Chemo meds tomorrow

Daddy woke me up to take this picture!
We got another spinal tap (lumbar puncture) this morning, with more chemo.  He was really good and it didn't take long.  Last time, the doctor/technician had a hard time finding the right region, as his body is NOT the body of a normal 13 year old.  This time, Patrick explained the issue last time, and they had no problem getting the right spot.  He was in and out of the procedure room in no time.

They have changed his blood thinner from Arixtra, which was once a day, back to Lovenox, which is twice a day.  The Lovenox tends to make him bruise more (we used this from about 2 years old until about 6 years old), but the doctors like it because we can hold it when we need a procedure.  I'm kinda hoping we can go back at some point, but he seems to be tolerating the twice a day injections. 

Patrick was able to run over to the apartment and get the internet hooked up (which is probably the most important part of setting up the apartment!)  He also picked up an Xbox at the Microsoft Store, so Ryan will have something to play with when he gets out of the hospital.  Spoiled little boy!

Otherwise, another boring day... More chemo tomorrow (Day 8 of 29).  After this dose, he won't be getting anymore chemo for a whole week!  Hopefully, he continues to do well.  All his numbers are stable or getting better, which has the doctors thrown for a loop, but we wouldn't expect any less from Ryan.  Patrick said that at the beginning, we would get 2-3 HemO
c doctors coming in for rounds, but today there were 6... He thinks that Ryan is getting a reputation around the hospital.  For those who know him, this is also not a surprise.  😉
 
Allen, Connor and Kathryn are heading to Billings tomorrow for State Music Festival, and I'm taking a day off... Church, laundry, cleaning, grading, etc.  It seems as though it's been weeks since I've had time to do that. 




------------------------------------------

Blasts - 0
ANC - 1418
Hematocrit - 23.7
Hemoglobin - 7.8
WBC - 1.8
Creatine - 0.5
Glucose - 88
Platelets - 31
APTT - 90
PT - 16.1

Comments

  1. AnonymousMay 6, 2017 at 7:16 AM

    Have you noticed that in most of Ryan's pics, there is a bag of Doritos somewhere in the frame? LOL...

    ReplyDelete

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