Day 5 - Discharge and a quick visit back to the ER

Fine, I'll wake up for a quick picture...
Everything seems to be going fine.  Ryan woke up in the hospital this morning, got labs and got his chemo infusion.  His H&H were low (21 and 7.0) so he got some blood, and then they shipped him off on his way.  He and Patrick headed back to the apartment, where he immediately fell asleep for a much deserved nap.

Of course, one of the side effects of the blood transfusion is that you sometimes get a little warm.  In his case, he had a fever of about 101, so Patrick called the fellow at the hospital to see if they wanted labs.  The docs and Patrick went back and forth for a few hours, debating as his temp would go to 101, then back down to 98, then back up to 100, then back down to 99, etc.  Finally, around 9-10 pm this evening, they decided to bring him into the ER to get cultures, just in case.  After lab results showed that everything looked great, and he got his cultures taken, they sent us back home to the apartment.

Patrick has been exceedingly pleased with the ER staff, nurses and the night fellows and doctors.  They have been so great, getting him right in (so he doesn't have to wait with other sick people in the ER waiting room) and getting his labs and cultures drawn quickly.  Most importantly, they have been so forthcoming with information and trusting in our ability to take good care of Ryan.

Tomorrow (Sunday), is his do-nothing day.  Ryan had asked to go to the movies (I think he wants to see Guardians of the Galaxy), so Patrick had asked the doctors their opinion.  The docs said his numbers were great, but try to pick a less populated movie.  Patrick called over to a local theater, who were great about giving him attendance numbers and suggestions for which times would be best.  Of course, it all depends on how he feels in the morning.  :)  If he's not up to it tomorrow, we have 4 days of chemo next week, so you never know...

It was great to see everyone in church this evening (it's nice to be home!)  And thank you, Lois, for the brownies (I did share with the kids...).

Thank you all for the prayers and good thoughts!


Comments

  1. Lois HillJune 11, 2017 at 8:41 AM

    Ryan does like to keep life interesting!! and Patrick and the medical staff on their toes. Sounds like the hospital is great to work with and makes it so much easier on everyone.
    Prayers of thanksgiving that Ryan is doing well and Prayers for continued healing, and for the strength of your awesome family
    It is the Raynesford Community Center's pleasure to do our blood drive on the 27th in Ryan's honor again.
    Yes, it was good to see you in church, miss that smile, and yes, we do miss Ryan singing and his booming voice at the end of church--Fr did say he wanted a loud response!!
    You are most welcome on the 2 kinds of chocolate brownies, and if you would have eaten all those you would have been sick and we can only have one sick person in the Simpson family.
    LUV U all

    ReplyDelete

Post a Comment

Popular posts from this blog

Day 500 - wow...

Image
Today - Sept, 2018 So, this is day 500.  500 days since we found out Ryan had Leukemia.  It's been a very strange year and a half, and you all have no idea how much I appreciate your support and your prayers.  For the last 500 days, I have posted an update every evening. I have tried to keep my posts positive (sometimes more for me than for anyone reading them).  There are things that I have not talked about, perhaps because putting those things into writing will make them possible.  Mostly, I have avoided any writing that implies that there is any alternative to things working out.   When we were first diagnosed with Leukemia, our doctors came in to give us 'the talk'.  For anyone who has gone through this, you know about 'the talk'.   Since Ryan had a small bowel and liver transplant, odds were that Ryan would not survive.  We knew this.  However, Ryan is an amazing kid, always defying the odds. May, 2017  (first month...
Read more

Day 490 - A bit smoky

Image
We've mostly recovered from our emotional day yesterday, only to wake up to a very smoky day.  We decided that Ryan could plant his flowers another day, as he probably shouldn't be outside too much on days like today.  So, it was a video game inside kind of day (after our school work was finished, of course!) We got a call from our Great Falls oncologist, who spoke to the Seattle team about Ryan's low magnesium numbers.  They want us to get labs tomorrow, and probably a bolus of magnesium to get him through the weekend.  Depending on his numbers, we might come in next week as well until the TPN can get this right composition of mag (there is a shortage right now). Hopefully, these fires can get under control and the air quality can get back to our beautiful Montana weather, so we can enjoy the outside again... Thank you so much for your continued prayers and good thoughts!
Read more

Day 498 - Visit to Ft. Benton

Image
I spent the day in Fort Benton with my mom and her friend... It was nice to spend the day walking around the fort and the museums, and just enjoy the beautiful day. Ryan stayed home with Patrick, so it was kind of a break day for him as well!  He woke up late and didn't have to worry about his school work all day... But, he will make up for the missing work tomorrow... One of the side benefits of homeschooling! His belly has completely closed up, now that he's been without the IV chemo for 2 weeks or so.  It looks great and hopefully will stay that way for a while.  We don't have another spinal tap until October, and I don't think we have the week long IV chemo for another few weeks.  Just enjoying feeling good! Thank you all for the prayers and good thoughts!
Read more