Day 77 - Clinic with GI and Surgery

Showing off the 'guns'...
We got to talk to GI and Surgery today about the hole in Ryan's belly.  He's been pretty anxious about it, so we've kinda been looking forward to this clinic visit all week. 

Amazingly, clinic lasted about 10 minutes, in which the doctors said he looked good.  They said the hole was healing nicely and would probably be completely healed in a few weeks.  In the mean time, we are moving forward with Chemo, and not worrying about it.  We'll have a follow up visit with them in about a month, to see how things are going.  But otherwise, he's doing great and no worries.  Huh...  Okay.

So, tomorrow, we have clinic with Chemo, and an infusion around noon.  That leaves the rest of the afternoon, in which Ryan said he wanted to go see Wonder Woman.  (He's been saying he didn't want to go, until today, when he finally decided that it might be okay...)

Thank you all for the prayers and good thoughts!!


Comments

  1. Lois HillJuly 7, 2017 at 6:07 AM

    That is amazing news, he is a tough young man and just healing on his own and the heck with surgery :) Glad you guys get some time to just hang out and enjoy. Isn't it amazing how many prayers are answered!!!!! LUV U all

    ReplyDelete
  2. AnonymousJuly 7, 2017 at 11:49 AM

    Tell Ryan that Wonder Woman was Aunt Jen's favorite superhero when she was a kid! I think he'll like the movie (and the hero). Let us know how it goes... XOXO, Aunt Jen

    ReplyDelete

Post a Comment

Popular posts from this blog

Day 500 - wow...

Image
Today - Sept, 2018 So, this is day 500.  500 days since we found out Ryan had Leukemia.  It's been a very strange year and a half, and you all have no idea how much I appreciate your support and your prayers.  For the last 500 days, I have posted an update every evening. I have tried to keep my posts positive (sometimes more for me than for anyone reading them).  There are things that I have not talked about, perhaps because putting those things into writing will make them possible.  Mostly, I have avoided any writing that implies that there is any alternative to things working out.   When we were first diagnosed with Leukemia, our doctors came in to give us 'the talk'.  For anyone who has gone through this, you know about 'the talk'.   Since Ryan had a small bowel and liver transplant, odds were that Ryan would not survive.  We knew this.  However, Ryan is an amazing kid, always defying the odds. May, 2017  (first month...
Read more

Day 490 - A bit smoky

Image
We've mostly recovered from our emotional day yesterday, only to wake up to a very smoky day.  We decided that Ryan could plant his flowers another day, as he probably shouldn't be outside too much on days like today.  So, it was a video game inside kind of day (after our school work was finished, of course!) We got a call from our Great Falls oncologist, who spoke to the Seattle team about Ryan's low magnesium numbers.  They want us to get labs tomorrow, and probably a bolus of magnesium to get him through the weekend.  Depending on his numbers, we might come in next week as well until the TPN can get this right composition of mag (there is a shortage right now). Hopefully, these fires can get under control and the air quality can get back to our beautiful Montana weather, so we can enjoy the outside again... Thank you so much for your continued prayers and good thoughts!
Read more

Day 498 - Visit to Ft. Benton

Image
I spent the day in Fort Benton with my mom and her friend... It was nice to spend the day walking around the fort and the museums, and just enjoy the beautiful day. Ryan stayed home with Patrick, so it was kind of a break day for him as well!  He woke up late and didn't have to worry about his school work all day... But, he will make up for the missing work tomorrow... One of the side benefits of homeschooling! His belly has completely closed up, now that he's been without the IV chemo for 2 weeks or so.  It looks great and hopefully will stay that way for a while.  We don't have another spinal tap until October, and I don't think we have the week long IV chemo for another few weeks.  Just enjoying feeling good! Thank you all for the prayers and good thoughts!
Read more