Day 93 - Feeling better

We were admitted yesterday for nausea, and after a day of IV meds, Ryan is feeling much better.  He slept most of the day, and doesn't seem to be throwing up anymore, which is totally awesome.  He hasn't had much sleep in the last few days, so sleep is the best thing for him right now.  The nurses are taking really good care of him, which is allowing Patrick a bit of a break as well.

His ANC is still dropping (down to 810 today), which is not unexpected.  They might give him GCSF, which is a med that helps bring that ANC back up where we like it.  Otherwise, his electrolytes are stable and they are really happy with how he is doing.  They are keeping him tonight and may keep him through Monday, depending on how it's going.

Patrick brought some popcorn to see if they wanted to watch a movie, but Ryan asked if he could just sleep. So all is going well!

Thanks for the continued prayers and good thoughts!

Comments

  1. Lois HillJuly 23, 2017 at 9:07 AM

    A little rest doesn't hurt anyone, especially a boy that is healing :) That must be an awesome hospital with what you tell about how they take care of Ryan, so luck to be there. Glad Patrick is getting a little break from constant medicating for the boy. both will feel better :) Prayers going up for all of you, as we did last night at mass. LUV U all

    ReplyDelete

Post a Comment

Popular posts from this blog

Day 498 - Visit to Ft. Benton

Image
I spent the day in Fort Benton with my mom and her friend... It was nice to spend the day walking around the fort and the museums, and just enjoy the beautiful day. Ryan stayed home with Patrick, so it was kind of a break day for him as well!  He woke up late and didn't have to worry about his school work all day... But, he will make up for the missing work tomorrow... One of the side benefits of homeschooling! His belly has completely closed up, now that he's been without the IV chemo for 2 weeks or so.  It looks great and hopefully will stay that way for a while.  We don't have another spinal tap until October, and I don't think we have the week long IV chemo for another few weeks.  Just enjoying feeling good! Thank you all for the prayers and good thoughts!
Read more

Day 499 - Movies with the grandparents

Image
Ryan headed up to the grandparents after lunch this afternoon for a day of movies and fun!  He stayed up way too late last night, and slept in this morning until about noon... spoiled kid, but I guess it is Saturday. He's feeling really good and it looks like his belly isn't causing any trouble.  And, with the new TPN, we don't have to do 2 infusions per day!  Woo hoo! Thank you all for the continued prayers and good thoughts!
Read more

Day 500 - wow...

Image
Today - Sept, 2018 So, this is day 500.  500 days since we found out Ryan had Leukemia.  It's been a very strange year and a half, and you all have no idea how much I appreciate your support and your prayers.  For the last 500 days, I have posted an update every evening. I have tried to keep my posts positive (sometimes more for me than for anyone reading them).  There are things that I have not talked about, perhaps because putting those things into writing will make them possible.  Mostly, I have avoided any writing that implies that there is any alternative to things working out.   When we were first diagnosed with Leukemia, our doctors came in to give us 'the talk'.  For anyone who has gone through this, you know about 'the talk'.   Since Ryan had a small bowel and liver transplant, odds were that Ryan would not survive.  We knew this.  However, Ryan is an amazing kid, always defying the odds. May, 2017  (first month...
Read more