Day 97 - Doing much better

So, after about 30 hours at home, we brought Ryan into the ER last night for nausea.  They started him on an acid blocker (Protonix) which, combined with IV Zofran worked really well.  He hasn't thrown up since 3am this morning, so they are hoping that adding the acid blocker, and adding a little more fluid, be helpful. 

We all decided to give him one more day in the hospital, to keep an eye on the switch back to oral meds and to give him an infusion of Albumin (he was a little low).  The plan is to try discharge tomorrow (again) and see if these few little tweaks might help. 

We had some fun today with Grandma CC, watched movies and got some rest.  He's been wanting to see Planet of the Apes, so we've told him we will try to get over to the movies once he gets discharged.  We don't have any chemo until next Monday, so these next few days are kind of our last hurrah.  Amazingly, his numbers look great (his ANC is up to 3600 and his platelets are around 86).  The doctors said to take advantage of the good numbers (and feeling better) before the next round of chemo starts. 

Thank you all for the continued prayers and good thoughts!!

Comments

Post a Comment

Popular posts from this blog

Day 500 - wow...

Image
Today - Sept, 2018 So, this is day 500.  500 days since we found out Ryan had Leukemia.  It's been a very strange year and a half, and you all have no idea how much I appreciate your support and your prayers.  For the last 500 days, I have posted an update every evening. I have tried to keep my posts positive (sometimes more for me than for anyone reading them).  There are things that I have not talked about, perhaps because putting those things into writing will make them possible.  Mostly, I have avoided any writing that implies that there is any alternative to things working out.   When we were first diagnosed with Leukemia, our doctors came in to give us 'the talk'.  For anyone who has gone through this, you know about 'the talk'.   Since Ryan had a small bowel and liver transplant, odds were that Ryan would not survive.  We knew this.  However, Ryan is an amazing kid, always defying the odds. May, 2017  (first month...
Read more

Day 490 - A bit smoky

Image
We've mostly recovered from our emotional day yesterday, only to wake up to a very smoky day.  We decided that Ryan could plant his flowers another day, as he probably shouldn't be outside too much on days like today.  So, it was a video game inside kind of day (after our school work was finished, of course!) We got a call from our Great Falls oncologist, who spoke to the Seattle team about Ryan's low magnesium numbers.  They want us to get labs tomorrow, and probably a bolus of magnesium to get him through the weekend.  Depending on his numbers, we might come in next week as well until the TPN can get this right composition of mag (there is a shortage right now). Hopefully, these fires can get under control and the air quality can get back to our beautiful Montana weather, so we can enjoy the outside again... Thank you so much for your continued prayers and good thoughts!
Read more

Day 498 - Visit to Ft. Benton

Image
I spent the day in Fort Benton with my mom and her friend... It was nice to spend the day walking around the fort and the museums, and just enjoy the beautiful day. Ryan stayed home with Patrick, so it was kind of a break day for him as well!  He woke up late and didn't have to worry about his school work all day... But, he will make up for the missing work tomorrow... One of the side benefits of homeschooling! His belly has completely closed up, now that he's been without the IV chemo for 2 weeks or so.  It looks great and hopefully will stay that way for a while.  We don't have another spinal tap until October, and I don't think we have the week long IV chemo for another few weeks.  Just enjoying feeling good! Thank you all for the prayers and good thoughts!
Read more