A place for us to keep track of this new chapter in our medical adventure with Ryan... As if his transplant wasn't enough...
Day 159 - Still going...
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But first, let me take a selfie...
Good day today! Ryan slept in and Patrick was able to get lots of work done! The boys hung out around the house with Ryan doing his schoolwork and playing games (mostly just entertaining himself, which he has gotten very good at doing!)
All is going fine and Ryan is still feeling great. Praying that it continues that way!
I spent the day in Fort Benton with my mom and her friend... It was nice to spend the day walking around the fort and the museums, and just enjoy the beautiful day. Ryan stayed home with Patrick, so it was kind of a break day for him as well! He woke up late and didn't have to worry about his school work all day... But, he will make up for the missing work tomorrow... One of the side benefits of homeschooling! His belly has completely closed up, now that he's been without the IV chemo for 2 weeks or so. It looks great and hopefully will stay that way for a while. We don't have another spinal tap until October, and I don't think we have the week long IV chemo for another few weeks. Just enjoying feeling good! Thank you all for the prayers and good thoughts!
We've mostly recovered from our emotional day yesterday, only to wake up to a very smoky day. We decided that Ryan could plant his flowers another day, as he probably shouldn't be outside too much on days like today. So, it was a video game inside kind of day (after our school work was finished, of course!) We got a call from our Great Falls oncologist, who spoke to the Seattle team about Ryan's low magnesium numbers. They want us to get labs tomorrow, and probably a bolus of magnesium to get him through the weekend. Depending on his numbers, we might come in next week as well until the TPN can get this right composition of mag (there is a shortage right now). Hopefully, these fires can get under control and the air quality can get back to our beautiful Montana weather, so we can enjoy the outside again... Thank you so much for your continued prayers and good thoughts!
Ryan woke up, took his shower and got started on his school work right away. As you can see, he's even smiling. I'm not sure what changed, but he isn't fighting me and he seems to be having a little fun... Who knew? I donated blood today at our blood drive. It was pretty busy, so I hope we met our goal. Afterwards, I had a great night with the girls at book club. It's so nice to spend an evening with good friends (even though I didn't read the book!) Hopefully, with all my free time now, I might be able to read the book for next time! Labs are scheduled for Thursday, and everything seems to be going good! Thank you all for the continued prayers and good thoughts!
still going good is a GOOD thing, and yes praying to that to continue. Both getting their work done
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Any chance of getting to music museum... Prayers to Patrick and Ryan incredible duo.
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