Day 240 - Much better today!

So, Ryan has always been a little strange.  He reacts to medication very, very quickly.  Once we figure out what the right medication is, he really starts to get better quickly.

As you can see from the picture, the swelling is down to normal, and he feels much better.  Patrick said that the belly still looks raw, but actually is better than yesterday.  The doctors are amazed.  A 'normal' person might be dealing with these problems for weeks before seeing any reasonable positive improvement.  In Ryan's case, it's days.  Gotta love this boy!!

The nurses said that they removed the peripheral IV from his hand this morning.  With the blood thinning medication, he was bleeding quite significantly, so they had to keep pressure on it.  Ryan was having quite the time arguing with himself... "Now, Ryan, you have to keep the pressure on."  "Oh come on, really?  I mean she didn't really mean it, did she?" "Yes Ryan, you are a good boy.  Do the right thing." "Ok, fine.  But I want more Legos"  "Maybe later..."  (apparently, he went back and forth with himself for a good 10 minutes... the nurses were rolling on the floor laughing... not really, it's a sterile environment, but no one wants to roll on those floors)

Patrick said that Ryan was really nice to him when he got there, and they enjoyed some games together.  He said that was the best example of Ryan feeling better!  Obviously, all of the prayers are doing something!!  We will be starting Chemo medications tonight at half dose, and see how that goes.  Everyone is so encouraged!

Thank you all for your continued prayers and good thoughts!!

Comments

Post a Comment

Popular posts from this blog

Day 500 - wow...

Image
Today - Sept, 2018 So, this is day 500.  500 days since we found out Ryan had Leukemia.  It's been a very strange year and a half, and you all have no idea how much I appreciate your support and your prayers.  For the last 500 days, I have posted an update every evening. I have tried to keep my posts positive (sometimes more for me than for anyone reading them).  There are things that I have not talked about, perhaps because putting those things into writing will make them possible.  Mostly, I have avoided any writing that implies that there is any alternative to things working out.   When we were first diagnosed with Leukemia, our doctors came in to give us 'the talk'.  For anyone who has gone through this, you know about 'the talk'.   Since Ryan had a small bowel and liver transplant, odds were that Ryan would not survive.  We knew this.  However, Ryan is an amazing kid, always defying the odds. May, 2017  (first month...
Read more

Day 490 - A bit smoky

Image
We've mostly recovered from our emotional day yesterday, only to wake up to a very smoky day.  We decided that Ryan could plant his flowers another day, as he probably shouldn't be outside too much on days like today.  So, it was a video game inside kind of day (after our school work was finished, of course!) We got a call from our Great Falls oncologist, who spoke to the Seattle team about Ryan's low magnesium numbers.  They want us to get labs tomorrow, and probably a bolus of magnesium to get him through the weekend.  Depending on his numbers, we might come in next week as well until the TPN can get this right composition of mag (there is a shortage right now). Hopefully, these fires can get under control and the air quality can get back to our beautiful Montana weather, so we can enjoy the outside again... Thank you so much for your continued prayers and good thoughts!
Read more

Day 498 - Visit to Ft. Benton

Image
I spent the day in Fort Benton with my mom and her friend... It was nice to spend the day walking around the fort and the museums, and just enjoy the beautiful day. Ryan stayed home with Patrick, so it was kind of a break day for him as well!  He woke up late and didn't have to worry about his school work all day... But, he will make up for the missing work tomorrow... One of the side benefits of homeschooling! His belly has completely closed up, now that he's been without the IV chemo for 2 weeks or so.  It looks great and hopefully will stay that way for a while.  We don't have another spinal tap until October, and I don't think we have the week long IV chemo for another few weeks.  Just enjoying feeling good! Thank you all for the prayers and good thoughts!
Read more