Day 251 - A little more information on his current clot situtation

Patrick and I got up early this morning, to make sure that we were at the hospital in time for rounds... we'd missed them for the last few days and I wanted to make sure I got a chance to talk to the doctors before Kathryn and I headed back to Montana. 

The doctors explained the 'clot' situation, with some graphs and drawings.  They believe that he had a few clots, which are making them nervous.  Although the initial concern of the swelling caused by the clot seems to be better (in that he no longer has the swelling in his face), they still are worried about the remaining clot(s).  In response, we have him on this anti-coagulation medication in a continuous drip.  While this seems as though it resolved the swelling complication, there are still a few clots in his body that are causing concerns.  So, they have decided to keep the current medication 'drip' going until he finishes this round of chemo.  We can't get discharged from the hospital on a drip medication.  We are on day 23, out of 56.  So, we don't expect to get discharged from the hospital for at least another month.  Ugh.

Fortunately, Ryan seems to be handling it with his usual grace and charm.  He woke up last night around midnight and stayed awake until at least 6 am.  Then slept until about 3 pm.  We arrived around 6 pm and played with him till about 9ish.  It's a weird schedule, but the nurses think he's just hysterical.  So polite and funny and independent.  He has his XBox and his Legos and his Surface to watch YouTube videos.  He calls the nurses when he needs something (more ice tea, a warm blanket, help with his Legos) and they have been amazing. 

We got him out of bed a little today, and he seems to be doing okay with the lack of movement.  He wasn't shaky, which I expected, and he walked around just fine.  Apparently, he gets up a lot and dances along with his movies (must be my kids, right?) 

So, we are doing okay.  It's hard, but we are making it work.  I'm a little worried about the boys at home with this monster storm on its way, but the grandparents are keeping an eye on them.  We are currently planning on taking the train home Saturday evening, getting into Shelby on Sunday, but I might push that to get home on Monday, if that storm looks worse than expected... Hoping that everyone stays warm and safe!

Thank you all for the continued prayers and good thoughts.

Comments

  1. Lois HillDecember 28, 2017 at 8:07 AM

    Ryan does keep life interesting, it is a blessing that he actually likes hospitals :) and it sounds like the nurses like him, win win. I was also thinking about him being in bed so much, but looks like he has that worked out too!! Praying that the clots dissolve quickly so he can go back to the apartment, but it looks like he is doing great with such a great hospital to be in--lucky lucky lucky.
    If they have 3-5 feet of snow in the Rockies, how does that make the train tracks for traffic, guess the Amtrack office knows!!?? Praying for a safe trip.
    We had 23 donors yesterday--met our goal of 23 since they upped it because we have had such great success in the past. It used to be 17. 2 couldn't donate--one low iron and one low blood, could only do 3/4 unit, another was really slow but managed to fill the "bag" if you are thinking of donating over there, make sure you will be within our window so you can donate again here, PLEASE our next one is Feb 27th
    LUV U all

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