Day 277 - Hanging with the grandparents!

Grandma and Grandpa got to spend the day with Ryan, which included watching movies and playing games!  Apparently, he was quite intense during Batman vs. Dracula... He only gets them for a little longer (their train leaves tomorrow night), so he's taking advantage of every minute!

He's still on track with his chemo, although his ANC is dropping... It's still above 750, but it's getting lower.  Patrick and I are taking bets on how low it's going to go (I'm being optimistic, Patrick is being pessimistic... we'll see how it goes!)

I'm sure Patrick is enjoying a bit of a break from his 'hospital' duties... He doesn't mind doing it, but I'm sure a break is nice.  :)

Thank you all for the continued prayers and good thoughts!

Comments

  1. Lois HillJanuary 22, 2018 at 10:58 PM

    what a great day to get to spend it with his grandparents. and yes he does get a little intense by the looks of the picture! Patrick probably does like the break, like you said--not that he minds doing it, but a break is always nice. Hope (& pray) Ryan's counts go back up
    LUV U all

    ReplyDelete
  2. AnonymousJanuary 23, 2018 at 7:43 AM

    Hello! A belated happy birthday! I wanted to send a card and can't remember where I put the address! Would you share again? I love my daily check in with Ryan via your blog. Rachel

    ReplyDelete

Post a Comment

Popular posts from this blog

Day 498 - Visit to Ft. Benton

Image
I spent the day in Fort Benton with my mom and her friend... It was nice to spend the day walking around the fort and the museums, and just enjoy the beautiful day. Ryan stayed home with Patrick, so it was kind of a break day for him as well!  He woke up late and didn't have to worry about his school work all day... But, he will make up for the missing work tomorrow... One of the side benefits of homeschooling! His belly has completely closed up, now that he's been without the IV chemo for 2 weeks or so.  It looks great and hopefully will stay that way for a while.  We don't have another spinal tap until October, and I don't think we have the week long IV chemo for another few weeks.  Just enjoying feeling good! Thank you all for the prayers and good thoughts!
Read more

Day 499 - Movies with the grandparents

Image
Ryan headed up to the grandparents after lunch this afternoon for a day of movies and fun!  He stayed up way too late last night, and slept in this morning until about noon... spoiled kid, but I guess it is Saturday. He's feeling really good and it looks like his belly isn't causing any trouble.  And, with the new TPN, we don't have to do 2 infusions per day!  Woo hoo! Thank you all for the continued prayers and good thoughts!
Read more

Day 500 - wow...

Image
Today - Sept, 2018 So, this is day 500.  500 days since we found out Ryan had Leukemia.  It's been a very strange year and a half, and you all have no idea how much I appreciate your support and your prayers.  For the last 500 days, I have posted an update every evening. I have tried to keep my posts positive (sometimes more for me than for anyone reading them).  There are things that I have not talked about, perhaps because putting those things into writing will make them possible.  Mostly, I have avoided any writing that implies that there is any alternative to things working out.   When we were first diagnosed with Leukemia, our doctors came in to give us 'the talk'.  For anyone who has gone through this, you know about 'the talk'.   Since Ryan had a small bowel and liver transplant, odds were that Ryan would not survive.  We knew this.  However, Ryan is an amazing kid, always defying the odds. May, 2017  (first month...
Read more