A place for us to keep track of this new chapter in our medical adventure with Ryan... As if his transplant wasn't enough...
Day 372 - Working and Relaxing
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Patrick had work to do today, so Ryan spent the day relaxing and playing games. He got into his Xbox for a bit, then a few hours with Legos, then to Minecraft. I'm so glad that Ryan can entertain himself!
The boys headed out for a late dinner, but Ryan was happy with that.
Things are still going well, and Ryan is still feeling great. Keeping our fingers crossed!
Thank you all for the continued prayers and good thoughts!
Today - Sept, 2018 So, this is day 500. 500 days since we found out Ryan had Leukemia. It's been a very strange year and a half, and you all have no idea how much I appreciate your support and your prayers. For the last 500 days, I have posted an update every evening. I have tried to keep my posts positive (sometimes more for me than for anyone reading them). There are things that I have not talked about, perhaps because putting those things into writing will make them possible. Mostly, I have avoided any writing that implies that there is any alternative to things working out. When we were first diagnosed with Leukemia, our doctors came in to give us 'the talk'. For anyone who has gone through this, you know about 'the talk'. Since Ryan had a small bowel and liver transplant, odds were that Ryan would not survive. We knew this. However, Ryan is an amazing kid, always defying the odds. May, 2017 (first month...
I spent the day in Fort Benton with my mom and her friend... It was nice to spend the day walking around the fort and the museums, and just enjoy the beautiful day. Ryan stayed home with Patrick, so it was kind of a break day for him as well! He woke up late and didn't have to worry about his school work all day... But, he will make up for the missing work tomorrow... One of the side benefits of homeschooling! His belly has completely closed up, now that he's been without the IV chemo for 2 weeks or so. It looks great and hopefully will stay that way for a while. We don't have another spinal tap until October, and I don't think we have the week long IV chemo for another few weeks. Just enjoying feeling good! Thank you all for the prayers and good thoughts!
While Kathryn, Connor and Allen had their first days at college today, Ryan worked really hard at his homeschool work. Ryan has been struggling with his addition and subtraction facts, and we have been practicing every day. Today, Patrick came up with a makeshift slide ruler, which allowed Ryan to visualize the math facts. He was so happy that he did extra work! Woo hoo! We love homeschool days like this! We also were treated to a beautiful rainy day. It may have even gotten a few snow flurries, but mostly just a lovely soft drizzle all day. We had hot tea and apple cider and warm food and sweatshirts, which just makes us look forward to fall! I'm sure it will be here before we know it! Thank you all for the continued prayers and good thoughts!
about all I can say is "prayers are answered once again" your little boy is growing up :)
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