Day 372 - Working and Relaxing

Patrick had work to do today, so Ryan spent the day relaxing and playing games.  He got into his Xbox for a bit, then a few hours with Legos, then to Minecraft.  I'm so glad that Ryan can entertain himself!

The boys headed out for a late dinner, but Ryan was happy with that.

Things are still going well, and Ryan is still feeling great.  Keeping our fingers crossed!

Thank you all for the continued prayers and good thoughts!

Comments

  1. Lois HillApril 28, 2018 at 7:52 AM

    about all I can say is "prayers are answered once again" your little boy is growing up :)
    LUV U all

    ReplyDelete

Post a Comment

Popular posts from this blog

Day 500 - wow...

Image
Today - Sept, 2018 So, this is day 500.  500 days since we found out Ryan had Leukemia.  It's been a very strange year and a half, and you all have no idea how much I appreciate your support and your prayers.  For the last 500 days, I have posted an update every evening. I have tried to keep my posts positive (sometimes more for me than for anyone reading them).  There are things that I have not talked about, perhaps because putting those things into writing will make them possible.  Mostly, I have avoided any writing that implies that there is any alternative to things working out.   When we were first diagnosed with Leukemia, our doctors came in to give us 'the talk'.  For anyone who has gone through this, you know about 'the talk'.   Since Ryan had a small bowel and liver transplant, odds were that Ryan would not survive.  We knew this.  However, Ryan is an amazing kid, always defying the odds. May, 2017  (first month...
Read more

Day 499 - Movies with the grandparents

Image
Ryan headed up to the grandparents after lunch this afternoon for a day of movies and fun!  He stayed up way too late last night, and slept in this morning until about noon... spoiled kid, but I guess it is Saturday. He's feeling really good and it looks like his belly isn't causing any trouble.  And, with the new TPN, we don't have to do 2 infusions per day!  Woo hoo! Thank you all for the continued prayers and good thoughts!
Read more

Day 496 - No snakes!

Image
After we finished up schoolwork today, Ryan wanted to go out into the backyard to dig up dinosaur bones... Unfortunately, it's been a while since we mowed the back lawn, and I was a bit concerned about snakes.  I didn't mean to worry him, but when I mentioned that he should keep an eye out, he decided he didn't want to outside after all... This prompted the guilty mom reaction, so I jumped on the lawn mower and mowed the back lawn, so he could dig for dinosaur bones without fear of snakes.  He followed me around the lawn for about an hour, making sure I was safe from the snakes as I mowed.  What an awesome kid! All is going good... Labs tomorrow (Thursday), to make sure our magnesium level is doing okay.  We also got a call from the home infusion center that makes our TPN, letting us know that they finally got a shipment of magnesium to put in his TPN, so we won't need a second daily infusion... woo hoo! Thank you all for the continued prayers and good thoughts...
Read more