Day 392 - Life is never easy, is it?

So, today was supposed to be a nice, relaxing day.  I finished up school early, and we were just going to hang around as a family.  Yea, things never go as we plan.

Patrick woke up this morning with an umbilical hernia.  He has been dealing with it for the last few months, but I'm sure the last 2 weeks with his hurt foot has put extra pressure on his abdomen muscles.  Anyway, he couldn't push the intestines back in, so he and grandma headed to the ER.  After a few hours and lots of pushing from the doctors, they got it back inside.  However, it will probably pop back out without surgery.  So, we now have surgery scheduled for next Tuesday on Patrick's belly.  Lovely.

The good news is that he is feeling okay for the moment and Ryan is doing fine.  The bad news is that the trip back to Seattle is delayed, again.  We've talked to the Seattle team and we are in the process of re-scheduling Ryan's dose of chemo.  It's never easy, is it?

Thank you all for the continued prayers and good thoughts!

Comments

  1. Lois HillMay 17, 2018 at 8:49 PM

    Life is never boring in the Simpson family. But now it is Patrick instead of Ryan needing medical attention. Prayers for a speedy recovery so they can get back to Seattle to start the last phase for Ryan and get back to Raynesford to stay. LUV U all

    ReplyDelete
  2. AnonymousMay 18, 2018 at 7:37 AM

    Ryan is going to have to share his expertise with the medical community with his dad! Glad they have each other and you to get through the tough times.

    ReplyDelete
  3. AnonymousMay 18, 2018 at 7:37 AM

    This comment has been removed by the author.

    ReplyDelete

Post a Comment

Popular posts from this blog

Day 500 - wow...

Image
Today - Sept, 2018 So, this is day 500.  500 days since we found out Ryan had Leukemia.  It's been a very strange year and a half, and you all have no idea how much I appreciate your support and your prayers.  For the last 500 days, I have posted an update every evening. I have tried to keep my posts positive (sometimes more for me than for anyone reading them).  There are things that I have not talked about, perhaps because putting those things into writing will make them possible.  Mostly, I have avoided any writing that implies that there is any alternative to things working out.   When we were first diagnosed with Leukemia, our doctors came in to give us 'the talk'.  For anyone who has gone through this, you know about 'the talk'.   Since Ryan had a small bowel and liver transplant, odds were that Ryan would not survive.  We knew this.  However, Ryan is an amazing kid, always defying the odds. May, 2017  (first month...
Read more

Day 490 - A bit smoky

Image
We've mostly recovered from our emotional day yesterday, only to wake up to a very smoky day.  We decided that Ryan could plant his flowers another day, as he probably shouldn't be outside too much on days like today.  So, it was a video game inside kind of day (after our school work was finished, of course!) We got a call from our Great Falls oncologist, who spoke to the Seattle team about Ryan's low magnesium numbers.  They want us to get labs tomorrow, and probably a bolus of magnesium to get him through the weekend.  Depending on his numbers, we might come in next week as well until the TPN can get this right composition of mag (there is a shortage right now). Hopefully, these fires can get under control and the air quality can get back to our beautiful Montana weather, so we can enjoy the outside again... Thank you so much for your continued prayers and good thoughts!
Read more

Day 498 - Visit to Ft. Benton

Image
I spent the day in Fort Benton with my mom and her friend... It was nice to spend the day walking around the fort and the museums, and just enjoy the beautiful day. Ryan stayed home with Patrick, so it was kind of a break day for him as well!  He woke up late and didn't have to worry about his school work all day... But, he will make up for the missing work tomorrow... One of the side benefits of homeschooling! His belly has completely closed up, now that he's been without the IV chemo for 2 weeks or so.  It looks great and hopefully will stay that way for a while.  We don't have another spinal tap until October, and I don't think we have the week long IV chemo for another few weeks.  Just enjoying feeling good! Thank you all for the prayers and good thoughts!
Read more