Day 409 - Fun Sunday!

Ryan stayed at the grandparents last night, so he was able to sleep in until almost noon.  He went for a walk with grandma and had a great lunch and dinner.  Afterwards, he came back home and we were able to get through all his schoolwork between 8pm and 10pm.  He is doing great and feeling really good!

We have labs tomorrow in town, so we can see how things are going with him.  Plans right now are to head back to Seattle on Thursday to pack up the apartment.  We have clinic next week with the Seattle team, and then driving back home.

Depending on the weather, we might have to go for another walk tomorrow... we avoid too much sun, as the chemo causes him to burn easily.  But, perhaps that's why hats were invented?  :)

Thank you all for the continued prayers and good thoughts!

Comments

  1. Lois HillJune 4, 2018 at 6:44 AM

    Love to hear that he is feeling good, eating, doing homework, wow life is good. But I don't want to say boring--or something will happen to make it NOT boring!!
    Prayers keep being answered
    LUV U all

    ReplyDelete

Post a Comment

Popular posts from this blog

Day 498 - Visit to Ft. Benton

Image
I spent the day in Fort Benton with my mom and her friend... It was nice to spend the day walking around the fort and the museums, and just enjoy the beautiful day. Ryan stayed home with Patrick, so it was kind of a break day for him as well!  He woke up late and didn't have to worry about his school work all day... But, he will make up for the missing work tomorrow... One of the side benefits of homeschooling! His belly has completely closed up, now that he's been without the IV chemo for 2 weeks or so.  It looks great and hopefully will stay that way for a while.  We don't have another spinal tap until October, and I don't think we have the week long IV chemo for another few weeks.  Just enjoying feeling good! Thank you all for the prayers and good thoughts!
Read more

Day 499 - Movies with the grandparents

Image
Ryan headed up to the grandparents after lunch this afternoon for a day of movies and fun!  He stayed up way too late last night, and slept in this morning until about noon... spoiled kid, but I guess it is Saturday. He's feeling really good and it looks like his belly isn't causing any trouble.  And, with the new TPN, we don't have to do 2 infusions per day!  Woo hoo! Thank you all for the continued prayers and good thoughts!
Read more

Day 500 - wow...

Image
Today - Sept, 2018 So, this is day 500.  500 days since we found out Ryan had Leukemia.  It's been a very strange year and a half, and you all have no idea how much I appreciate your support and your prayers.  For the last 500 days, I have posted an update every evening. I have tried to keep my posts positive (sometimes more for me than for anyone reading them).  There are things that I have not talked about, perhaps because putting those things into writing will make them possible.  Mostly, I have avoided any writing that implies that there is any alternative to things working out.   When we were first diagnosed with Leukemia, our doctors came in to give us 'the talk'.  For anyone who has gone through this, you know about 'the talk'.   Since Ryan had a small bowel and liver transplant, odds were that Ryan would not survive.  We knew this.  However, Ryan is an amazing kid, always defying the odds. May, 2017  (first month...
Read more