Day 269 - No picnics on the hospital floor.

Ryan got busted today.  Apparently, he decided to take his lunch to the floor for a picnic.  (I can feel my nurse friends cringing right now)... the hospital floor is kinda gross.  We've already learned that we throw away things on the hospital floor.  But, Ryan wanted to have a picnic on the grass, so he decided to have it on the floor.  Ewww...

Patrick came in and saw him on the floor, food all spread out, enjoying his lunch.  Unfortunately, daddy had to ruin it by making him get all cleaned up (he needed a shower anyway).  Meany...

It was about this time that I called and checked in, so I heard all about how mad Ryan was... But he got over it.  I explained that if he wanted a picnic on the floor, he needed to ask his nurses for extra clean sheets, so they could keep the ucky germs out.  He seemed to understand, but was still mad at Patrick for giving him a shower.

After he kicked Patrick out, he called me and we had a good chat.  I found a book that he might enjoy, so I read to him on video chat for about a 1/2 hour.  He snuggled in bed, on the phone, and seemed to like it.  After chapter 1, he told me that he was going to work on his project, but could we do it again tomorrow... I think that can be arranged...

We started the next round of chemo today.  The nurses are still amazed at his stamina.  Most patients are violently sick or at least really tired after getting the chemo.  With Ryan, you can't even tell that he's had it.  Thank God for little things like this!!

Thank you all for the continued prayers and good thoughts!

Comments

  1. Lois HillJanuary 14, 2018 at 10:47 PM

    what a kid :) yes the sheet idea is a good one!! Prayers still being answered that he is continuing with the chemo and not being sick or tired. LUV U all

    be careful going to school in the morning--very very slippery tonight

    ReplyDelete

Post a Comment

Popular posts from this blog

Day 500 - wow...

Image
Today - Sept, 2018 So, this is day 500.  500 days since we found out Ryan had Leukemia.  It's been a very strange year and a half, and you all have no idea how much I appreciate your support and your prayers.  For the last 500 days, I have posted an update every evening. I have tried to keep my posts positive (sometimes more for me than for anyone reading them).  There are things that I have not talked about, perhaps because putting those things into writing will make them possible.  Mostly, I have avoided any writing that implies that there is any alternative to things working out.   When we were first diagnosed with Leukemia, our doctors came in to give us 'the talk'.  For anyone who has gone through this, you know about 'the talk'.   Since Ryan had a small bowel and liver transplant, odds were that Ryan would not survive.  We knew this.  However, Ryan is an amazing kid, always defying the odds. May, 2017  (first month...
Read more

Day 490 - A bit smoky

Image
We've mostly recovered from our emotional day yesterday, only to wake up to a very smoky day.  We decided that Ryan could plant his flowers another day, as he probably shouldn't be outside too much on days like today.  So, it was a video game inside kind of day (after our school work was finished, of course!) We got a call from our Great Falls oncologist, who spoke to the Seattle team about Ryan's low magnesium numbers.  They want us to get labs tomorrow, and probably a bolus of magnesium to get him through the weekend.  Depending on his numbers, we might come in next week as well until the TPN can get this right composition of mag (there is a shortage right now). Hopefully, these fires can get under control and the air quality can get back to our beautiful Montana weather, so we can enjoy the outside again... Thank you so much for your continued prayers and good thoughts!
Read more

Day 498 - Visit to Ft. Benton

Image
I spent the day in Fort Benton with my mom and her friend... It was nice to spend the day walking around the fort and the museums, and just enjoy the beautiful day. Ryan stayed home with Patrick, so it was kind of a break day for him as well!  He woke up late and didn't have to worry about his school work all day... But, he will make up for the missing work tomorrow... One of the side benefits of homeschooling! His belly has completely closed up, now that he's been without the IV chemo for 2 weeks or so.  It looks great and hopefully will stay that way for a while.  We don't have another spinal tap until October, and I don't think we have the week long IV chemo for another few weeks.  Just enjoying feeling good! Thank you all for the prayers and good thoughts!
Read more